Patient Advice and Liaison Service (PALS)
PALS can be found in each NHS Trust. You can talk to a PALS member of staff about your incident and they will try to help you resolve any issues with the Trust informally. PALS can be particularly useful if you need action immediately, for example if the incident has been a problem with your care and you are still in hospital. You can ask a member of staff at the Trust for details of the local PALS service, or you can find more information using the link above.
Action Against Medical Accidents (AvMA)
AvMA is an independent charity which provides free specialist advice to people who have been affected by patient safety incidents. They can advise you about your investigation as well as other processes that you may be faced with or be considering (for example inquests; complaints; fitness to practice/regulatory issues raised by the incident; or legal action). They can also give you details of other organisations providing different sorts of support.
The Patients Association
An independent patient charity campaigning for improvements in health and social care for patients. You can call the helpline on 0800 345 7115 (freephone number), or email email@example.com.
Citizens Advice can provide high quality, independent advice about any problems or questions you might have. They also have a network of national and local independent charities that can provide free and confidential advice.
Healthwatch is your health and social care champion where you can share your experience. As an independent statutory body, they have the power to make sure NHS leaders and other decision makers listen to your feedback and improve standards of care. Last year they helped nearly a million people have their say and get the information and advice they need.
A place where you can share your experience of health or care services, and help make them better for everyone.
A registered charity that provides support and advice to anyone who is struggling with their mental health. If you have been affected emotionally following the incident you experienced or if you are finding the investigation process difficult, you can contact Mind.
A registered charity providing support to anyone in emotional distress or anyone who is struggling to cope. You can contact the Samaritans for free and there will always be someone there to listen to you and talk to you. Their support is available 24 hours a day, 7 days a week, 365 days of the year.
The Harmed Patients Alliance
A campaign group founded by Joanne Hughes and James Titcombe, two parents who have lost children due to unsafe healthcare. Harmed Patients Alliance works to raise awareness of harmed patients and families needs for recovery, and call for the elimination of poor responses and secondary harm.
Making Families Count
Making Families Count aims to improve outcomes for families affected by serious harm and traumatic bereavements in health and social care services. Making Families Count is made up of people who are recognised experts in their respective fields. Some have suffered the loss of a family member through traumatic and complex bereavement. Others are highly experienced, senior NHS investigators.
Safety investigation jargon buster > HSIB
Visit the HSIB website to view a guide to the terms commonly used in safety investigations and their definitions.
Get help with funeral costs
Find out if you could get a Funeral Expenses Payment (also called a Funeral Payment) if you need help to pay for a funeral you’re arranging.
What to do when someone dies
Check what to do after a death – how to register the death, notify government departments and deal with the estate.
Tell Us Once
A service that lets you report a death to most government organisations in one go.
VoiceAbility Advocacy and Involvement
VoiceAbility offers a free and independent advocacy and user involvement service to support people who face disadvantage or discrimination. They support people to speak up and have their rights and choices respected.
POhWER help people who, because of disability, illness, social exclusion and other challenges, find it difficult to express their views or get the support they need. Their mission is to empower people to have a voice and make a real difference to their lives. They do this by speaking for them when they can’t and supporting them to speak for themselves when they can.
INQUEST is a small charity that provides free advice to people bereaved by a death in custody and detention and is entirely independent of government. The charity provides specialist advice on deaths in custody or detention, or involving state failures in England and Wales. This includes a death that has occurred in psychiatric care and cases that involve multi-agency failings and raise wider issues of state and corporate accountability.
WAY Widowed & Young Bereavement Support UK
Widowed and Young (WAY) offers a unique peer-to-peer support network to anyone whose partner died when they were young.
Winston’s Wish charity supports bereaved children, young people, their families and the professionals who support them.
Papyrus UK Suicide Prevention
PAPYRUS Prevention of Young Suicide is the UK charity dedicated to the prevention of suicide and the promotion of positive mental health and emotional wellbeing in young people.
Survivors of Bereavement by Suicide (SOBS)
SOBS are the only UK-based organisation offering peer-led support to adults impacted by suicide loss.
Cruse Bereavement Support
Helping people through one of the most painful times in life – with bereavement support, information and campaigning.
HundredFamilies provides information, analysis and support for families affected by mental health homicides in Britain.
A peer support group for LGBTQ people who have experienced a bereavement.
Jewish Bereavement Counselling Service (JBCS)
JBCS support the Jewish community following a bereavement.
Muslim Community Helpline
Confidential, non-judgmental listening and emotional support service for people from the Muslim community.
Muslim Bereavement Support Service
Volunteers provide guidance in accordance with the Qur’an and Ahadeeth on bereavement, with advice on prayers and other religious aspects.
Campaign for Safer Births
The Campaign for Safer Births is working to improve NHS maternity services in order to reduce the avoidable deaths and injuries of babies and mothers during labour.
Birth Trauma Association
Helping people traumatised by childbirth and campaigning for improvements
The Lullaby Trust
The Lullaby Trust offers confidential support to anyone affected by the sudden and unexpected death of a baby or young child.
Saving babies’ lives. Supporting bereaved families (SANDS)
Sands supports anyone who has been affected by the death of a baby before, during or shortly after birth.
The Compassionate Friends
The Compassionate Friends (TCF) is a charitable organisation of bereaved parents, siblings and grandparents dedicated to the support and care of other similarly bereaved family members who have suffered the death of a child or children from a month old and and from any cause.
Petals provide and promote specialist counselling for parents across the UK following baby loss.
Tommy’s exists to support, care for and champion people, no matter where they may be on their pregnancy journey.
The Motherhood Group
Sandra Igwe is a Black maternal health advocate, TEDx speaker, and the Founder of The Motherhood Group, a social enterprise that supports the Black maternal experience. The group was founded by Sandra Igwe in 2016, after the traumatic birth of her first daughter, Zoe Igwe.
Five X More is a grassroots organisation committed to changing Black women and birthing people’s maternal health outcomes in the UK. It was initiated in 2019 when two Black mothers came together with the dream of improving maternal mortality rates and health care outcomes for Black women.